Ko-fi helps me keep going
What happens when your life doesn’t go the way you thought it would? Not in the “I took a different career path” way—but in the “my body changed everything” way. In the “my days revolve around symptoms, side effects, appointments, and survival” kind of way.
That’s the version of life I found myself in. This blog post is for anyone who's grieving the life they imagined—and trying to find meaning in the life they're living now.
There’s a version of my life that exists in my mind. In that version, I go on spontaneous road trips. I cook dinner without thinking twice. I stay out late and wake up early. I move freely, easily, painlessly.
But I don’t live in that version. I live in the version where my body makes the rules. Where EDS, POTS, Gastroparesis, Endo, and more all show up uninvited. Where food doesn’t always nourish. Where pain and fatigue whisper (and sometimes scream) their limits.
Some days, I grieve that other life deeply. And I think that’s okay. Grief doesn’t only belong to death. It also belongs to lost dreams, lost ease, lost versions of ourselves. If you’ve ever felt guilty for mourning a life you didn’t get to live—this is your permission to let that grief breathe.
Healing isn’t about pretending you’re okay with everything.
It’s about making space for both truths:
I didn’t ask for this.
I’m still learning how to live inside it.
Both can exist. Some days, the grief will be heavier. Other days, the peace will surprise you. And on most days, we’re just doing our best to hold both.
When you catch yourself spiraling into everything you’ve lost, try asking:
What has this season taught me that I might’ve missed otherwise?
“To rest without guilt. To ask for help when I need it. To notice small wins.”
What are the tiny wins I often overlook?
“I made it through a hard week. I took a shower even though it drained me. I remembered to eat something soft that didn’t upset my stomach.”
Where can I offer myself softness today, instead of shame?
“By letting myself nap without calling it lazy.”
This isn’t about toxic positivity. It’s about survival. And maybe—even joy, in the in-between moments.
Alice in Healing Land isn’t a place for perfection. It’s a place for slow mornings, flare day reflections, creative coping, and soft support.
I created this blog during one of the hardest chapters of my life—not because I had answers, but because I wanted to reach out to others feeling the same way I did. So if this post found you on a hard day, I hope it made you feel less alone. And if it helped, feel free to stay awhile. Read. Reflect. Rest.
You're welcome here exactly as you are.
💜 One Spoon at a Time, Alice 💜
March 19, 2025